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No more breathless battles with Medicare!

How Understood Care Advocates Help You Navigate Doctor’s Appointments

Keeping up with doctor’s appointments is essential to managing health and staying informed, but it can often feel overwhelming. From scheduling and transportation to understanding medical advice and ensuring proper follow-up, there are many details to manage. This is where Understood Care can help. Our advocates serve as trusted guides, working alongside you or your loved one to make the process easier, more organized, and more comfortable.

Personalized Support Before and After Every Appointment
Understood Care advocates provide hands-on help with all aspects of medical visits. We help you schedule appointments, confirm provider information, and prepare for the visit itself. This might include reviewing your questions ahead of time, making sure prescriptions are current, or gathering any medical records needed. After the appointment, we help you understand the doctor’s recommendations and take the right steps to follow through on care instructions, referrals, or additional tests.

A Partner to Help You Understand Your Care
Medical visits can involve unfamiliar language, new diagnoses, or complex treatment plans. Your advocate is there to help translate this information into clear, understandable terms. We make sure you feel confident about what was discussed during the visit and that you know what actions to take next. If something is unclear or left unanswered, your advocate can follow up with your provider to get the information you need.

Coordination Across Your Care Team
Many people receive care from more than one doctor. Your advocate helps ensure that your care is well coordinated across primary care providers, specialists, and other professionals. We help share information between offices, keep records consistent, and make sure appointments align with your overall care goals. This reduces confusion and helps prevent important details from being overlooked.

Support for Getting to and From the Appointment
Transportation should never be the reason you miss a doctor’s visit. Your advocate helps you arrange reliable ways to get to and from appointments. Whether that means booking a ride service, coordinating with a caregiver, or finding community transportation resources, we make sure you have safe and timely access to care. We also consider mobility needs, language assistance, and other accessibility factors to support your comfort and safety.

Emotional and Practical Support Throughout
Doctor’s visits can bring up feelings of stress, uncertainty, or fatigue, especially when managing long-term conditions or complex health needs. Understood Care advocates are here to offer steady support throughout the experience. We are here to listen, provide encouragement, and help you make informed decisions without feeling overwhelmed.

Confidence in Every Step of the Journey
With Understood Care, you are never alone in managing your medical appointments. From the moment you schedule your visit to the follow-up that comes afterward, your advocate is there to help you stay organized, prepared, and empowered. We make it easier to stay connected to the care you need and to move forward with confidence.

Breathing easier with Medicare and home oxygen support

If you are living with chronic lung or heart disease, you already know that feeling short of breath can be frightening and exhausting. Low oxygen levels can cause fatigue, confusion, morning headaches, and even organ damage over time. Oxygen therapy adds extra oxygen to what you breathe, helping your body work better and helping you stay more active and independent.

Common reasons to need oxygen therapy or nebulizer treatments include:

  • Chronic obstructive pulmonary disease (COPD)
  • Pulmonary fibrosis and other interstitial lung diseases
  • Severe asthma or bronchiectasis
  • Heart failure
  • Lung cancer or lung infections like pneumonia

For many people with these conditions, Medicare can help pay for:

  • Home oxygen concentrators and portable oxygen
  • Oxygen tanks or liquid oxygen
  • Nasal cannulas, masks, and other oxygen delivery supplies
  • Nebulizer machines and certain nebulized medications

The problem is that getting this equipment covered often feels like a maze. You may hear that you need a special appointment, a specific test, a certain form, and then you still wait for deliveries. If you are already struggling to breathe, that red tape can add stress and anxiety on top of your physical symptoms.

This guide will walk you through how Medicare coverage for oxygen and nebulizers works, what steps are usually required, and how a patient advocate can help you gather paperwork, work with durable medical equipment (DME) companies, and keep your equipment running so you are not left without the support you need.

How Medicare covers oxygen and nebulizer equipment

What Medicare Part B usually covers

In general, Medicare Part B (Medical Insurance) treats oxygen equipment and nebulizers as durable medical equipment (DME) when your doctor prescribes them for use at home and documents that they are medically necessary.

For most people, that can include:

  • Home oxygen systems
    • Stationary oxygen concentrator for use at home
    • Portable oxygen concentrator or portable tanks for use outside the home
  • Oxygen-related supplies and accessories
    • Nasal cannulas
    • Face masks
    • Tubing and connectors
    • Humidifier bottles if needed
  • Nebulizer machines for inhaled medications
  • Certain medications that are meant to be given by nebulizer and meet Medicare criteria

Medicare rules can change over time, and details can vary by region, so it is important to confirm coverage with your doctor, your DME company, and Medicare itself.

What you usually pay

In most cases, once you meet your Part B deductible:

  • You pay 20 percent of the Medicare-approved amount for covered oxygen equipment, supplies, and nebulizers, if your supplier accepts Medicare assignment.
  • Medicare pays the remaining 80 percent.

For oxygen, Medicare usually treats the device as a rental:

  • You typically rent the equipment from a supplier for 36 months.
  • During those 36 months, your monthly rental covers the machine, necessary accessories, and many service visits.
  • After that, the supplier must continue to maintain and service your oxygen system for up to a total of 5 years as long as you still medically need it.

Because these rules are complex, many people feel as if they are fighting a battle just to keep their oxygen running or their nebulizer medication covered. You should not have to fight for every breath.

What you need to qualify for Medicare oxygen coverage

Medicare looks for clear proof that oxygen therapy is medically necessary. In practice, that usually means three pieces work together:

1. A recent, face to face visit with your clinician

Medicare requires a face to face appointment with a qualified clinician, such as:

  • Your primary care doctor
  • Your pulmonologist (lung specialist)

This visit must be within a Medicare-defined time window before the supplier delivers your equipment. Your clinician uses this visit to:

  • Review your symptoms and diagnoses
  • Document how breathlessness affects your daily activities
  • Review any prior hospitalizations or emergency visits related to breathing

Certain categories of DME, including many oxygen items, fall under streamlined DMEPOS order and face to face encounter requirements. These rules define the kind of visit, documentation, and timing your order needs.

2. Objective testing that shows low oxygen or significant lung disease

Your clinician may order one or more tests, such as:

  • Pulse oximetry
    • A small clip on your finger that measures your oxygen saturation
  • Arterial blood gas (ABG)
    • A blood test that measures oxygen and carbon dioxide levels directly
  • Pulmonary function tests (PFTs)
    • Spirometry and other tests that measure how well you move air in and out of your lungs and how well oxygen passes into your bloodstream

For long-term home oxygen therapy in conditions like COPD, research has shown that continuous oxygen for people with severe low oxygen can improve survival, exercise capacity, and quality of life.

Not every person needs every test. Your provider will decide what is appropriate and document that your numbers meet Medicare criteria for coverage.

3. A complete order and supporting paperwork

Your clinician must provide a detailed written order that includes:

  • The type of device (for example, stationary oxygen concentrator, portable concentrator, nebulizer)
  • Your required oxygen flow rate or nebulizer medication
  • When and how long you should use the device
  • Any special features needed, such as a portable system for leaving the house

In addition, many suppliers ask for a DME form or clinical information form that must be signed by both you (or your caregiver) and your clinician. The form often requests:

  • Your diagnosis and baseline oxygen levels
  • The tests used to document your need
  • Confirmation that you can safely use the equipment

Some suppliers also request recent PFT results or hospital discharge summaries, especially if you had a recent hospitalization related to your breathing.

Gathering all of this is where many patients feel stuck. That is exactly the gap a patient advocate can help close.

The paperwork path: from prescription to equipment in your home

The video script you provided describes what this process feels like in real life. Here is how those steps typically play out, and how an advocate can turn “hoops” into a clear checklist.

Step 1: Schedule your face to face visit

You need a timely appointment with your primary care clinician or pulmonologist. From the video and from everyday practice, this usually includes:

  • Confirming that the clinician is comfortable ordering home oxygen or a nebulizer
  • Making sure your appointment is within the required time window for Medicare and your DME company
  • Bringing any hospital discharge papers, prior test results, and medication lists

A patient advocate can:

  • Help you schedule this appointment
  • Make sure the office knows in advance that you need oxygen or nebulizer documentation
  • Send your doctor a short summary of your symptoms and goals so the visit can focus on qualifying you for the right equipment

Step 2: Complete any testing your doctor orders

Your clinician may order:

  • Pulse oximetry at rest and with walking
  • ABG testing
  • Pulmonary function testing (PFTs)

The video mentions that some DME companies require a current PFT result. Your advocate can:

  • Help you get those tests scheduled
  • Confirm that test dates and results meet Medicare and supplier requirements
  • Make sure results are sent to the clinician who will sign your oxygen or nebulizer order

Step 3: Make sure the order and DME forms are filled out completely

In the video, the advocate explains that they:

  • Obtain the DME form from the equipment company
  • Fill it out with you or on your behalf
  • Send it to the doctor who is ordering your oxygen or nebulizer
  • Follow up with the doctor to confirm the form was completed

This step often involves many phone calls, faxes, and patient portal messages. An organized checklist usually includes:

  • Detailed prescription for oxygen or nebulizer
  • Supporting tests and clinic notes
  • Signed DME form from the supplier
  • Any prior authorization forms if required by your Medicare Advantage plan

Your advocate can then either:

  • Submit the completed packet directly to the DME company on your behalf, or
  • Confirm that the clinician’s office has sent everything and that the supplier received it

Step 4: Coordinate delivery, setup, and training

Once Medicare and the supplier have what they need, the DME company:

  • Verifies coverage and any copayments
  • Schedules a delivery date for your equipment
  • Provides teaching on how to use and maintain your devices

Your advocate can:

  • Confirm that the exact equipment ordered (for example, portable oxygen concentrator rather than tanks) matches your prescription and needs
  • Make sure delivery and setup are scheduled at a time that works for you and your caregiver
  • Help answer questions afterward if you are unsure about settings, supplies, or what to do if the equipment stops working

Types of equipment Medicare may cover, and what they do

Home oxygen systems

Common oxygen systems include:

  • Stationary oxygen concentrators
    • Plug into the wall and pull oxygen from room air
    • Designed for use in a fixed location at home
  • Portable oxygen concentrators
    • Smaller, battery-powered devices for outings or travel
    • Often deliver oxygen in pulses when you inhale
  • Compressed gas or liquid oxygen tanks
    • Refillable tanks that store oxygen under pressure or as a cold liquid
    • Require periodic refills by your DME company

Oxygen reaches you through:

  • A nasal cannula, a small tube with soft prongs that rest in your nostrils
  • A face mask, which may be used when higher flows are needed

When used correctly for people with documented low oxygen, home oxygen therapy can improve energy, sleep, and exercise tolerance, and can help protect long-term organ health.

Nebulizers and nebulized medications

A nebulizer is a machine that turns liquid medicine into a mist you breathe into your lungs.

Nebulizers are often used for:

  • COPD or asthma flare-ups
  • People who have trouble using handheld inhalers
  • Delivering medications such as bronchodilators or inhaled steroids

Supplies typically include:

  • The nebulizer machine and tubing
  • A mouthpiece or face mask
  • Medication vials prescribed by your clinician

Medicare Part B usually covers nebulizer machines as DME and may cover certain medications that meet specific criteria for use in the home.

Ongoing support: staying covered and keeping equipment working

The video highlights an important reality: once your equipment is delivered, you still need continuity of care to stay safe and maintain coverage.

Here are common situations where an advocate can step in.

If your current equipment is not working well

You might need help when:

  • Your concentrator is making strange noises, overheating, or alarming
  • Your portable oxygen battery will not hold a charge
  • Your nebulizer is not producing enough mist
  • Your supplies are worn out

Your advocate can:

  • Contact the DME company on your behalf
  • Help you document problems clearly
  • Push for repair, replacement, or technician visits when needed
  • Confirm that any loaner equipment is covered by your plan

If you need new oxygen or nebulizer supplies

Over time you may need:

  • Replacement nasal cannulas or masks
  • New tubing and filters
  • A new nebulizer delivery unit (the hand-held piece)
  • Refills of nebulized medication

Your advocate can help:

  • Track how often you are eligible for new supplies under Medicare rules
  • Ask your clinician for updated prescriptions if needed
  • Work with the DME supplier to schedule regular shipments so you do not run out

If your coverage needs to be renewed

Some plans or suppliers periodically request:

  • Updated clinic notes
  • Repeat oxygen or PFT testing
  • New signed orders

Your advocate can:

  • Remind you when follow-up visits or tests are due
  • Make sure your clinician’s office sends updated documentation on time
  • Check that the DME company has everything before your current coverage window ends

Caring for your emotional health when breathing is hard

When breathing feels difficult, it is completely understandable to feel anxious. People with COPD and other lung diseases have higher rates of anxiety, and shortness of breath can trigger the body’s stress response even when there is no immediate danger.

You might notice:

  • Feeling panicky when you cannot catch your breath
  • Worry about leaving the house in case your oxygen runs low
  • Difficulty sleeping because you are afraid something will go wrong overnight

Practical steps that can help include:

  • Talking openly with your clinician about anxiety and mood
  • Practicing breathing techniques or pulmonary rehabilitation exercises your team recommends
  • Using your equipment as prescribed, since better oxygen levels can reduce some anxiety symptoms
  • Reaching out to your support system, including caregivers, friends, and your advocate

Your advocate can:

  • Help you prepare questions about anxiety and breathlessness for your clinician
  • Encourage you to seek counseling or support groups if needed
  • Reduce paperwork stress so you have more energy to focus on your health

Safety tips for home oxygen and nebulizer use

Oxygen therapy and nebulizers are generally safe when used correctly, but they do require special precautions.

Oxygen safety at home

Trusted organizations such as the American Lung Association and MedlinePlus recommend that people who use oxygen at home:

  • Never allow smoking near oxygen equipment
  • Stay several feet away from open flames, gas stoves, candles, and fireplaces
  • Keep oxygen tanks secured in an upright position
  • Store tanks in a well-ventilated area
  • Keep oxygen away from space heaters and other heat sources
  • Avoid using oil-based products (like petroleum jelly) on the face where oxygen is delivered
  • Make sure smoke detectors and fire extinguishers are present and working

Your clinician or oxygen supplier should review safety instructions with you during setup. If anything is unclear, do not hesitate to ask them to repeat or re-demonstrate.

Nebulizer safety and cleaning

To use your nebulizer safely at home:

  • Wash your hands before handling medication or equipment
  • Use the nebulizer exactly as your clinician and manufacturer instruct
  • Clean and dry the mouthpiece or mask after each use, following the care instructions
  • Disinfect parts on the schedule recommended by your clinician or equipment company
  • Store medication and equipment away from heat and moisture

If you feel more short of breath, dizzy, or unwell during or after a treatment, stop and contact your clinician or follow your emergency plan.

Practical questions to ask your doctor or advocate

When you meet with your clinician or talk to your advocate, consider asking:

  • What diagnosis is leading you to prescribe oxygen or a nebulizer for me?
  • What tests do I need to qualify for Medicare coverage?
  • How many hours per day should I use my oxygen, and at what flow rate?
  • Do I need oxygen during sleep, activity, or both?
  • Is a portable oxygen concentrator right for me, or are tanks a better choice?
  • Which DME companies in my area accept Medicare and offer the equipment we discussed?
  • How often will I need follow-up visits or repeat testing to keep coverage?
  • What should I do if my equipment stops working outside business hours?

Your advocate can help you track these answers and turn them into a written plan you can refer back to when you feel tired or overwhelmed.

Frequently asked questions about Medicare, oxygen, and nebulizers

  • Does Medicare cover home oxygen concentrators and portable oxygen?
    Yes. Medicare Part B generally covers home oxygen equipment, including stationary concentrators, portable oxygen systems, and related supplies, when your clinician documents that you meet medical criteria and you use a Medicare-enrolled supplier.
  • How do I qualify for Medicare oxygen therapy coverage?
    You usually need a recent face to face visit with your clinician, objective testing that shows low oxygen or significant lung disease, and a detailed written order. Your clinician and supplier must both be enrolled in Medicare, and your documentation must meet Medicare criteria for medical necessity.
  • Does Medicare cover nebulizers and nebulizer medications?
    Yes. Under Part B, Medicare considers nebulizer machines to be durable medical equipment. Certain medications used in the nebulizer may also be covered when your clinician prescribes them for use in your home and they meet Medicare rules for medical necessity.
  • Can I switch oxygen or nebulizer suppliers if I am unhappy with my current company?
    Sometimes. Because oxygen is usually set up as a long-term rental, there may be limits on switching suppliers before your current rental period ends. Your advocate can help you review your situation, talk with your clinician, and contact Medicare or your plan to understand your options.
  • What if the DME company will not help me or says my paperwork is incomplete?
    An advocate can help you find out exactly what is missing, coordinate with your clinician’s office to supply additional documentation, and follow up with the supplier until they confirm that your order is complete. If problems continue, they can help you file a complaint or explore other suppliers.
  • Can I travel or fly with Medicare-covered portable oxygen?
    Many portable oxygen concentrators are approved for air travel, but you must plan ahead. You will usually need a letter or prescription from your clinician, airline approval, and enough charged batteries to cover your travel time. Your advocate can help you coordinate with the airline, your clinician, and your DME company.
  • What should I do if I feel more breathless even though I am using my oxygen or nebulizer as prescribed?
    Increased breathlessness is a reason to contact your clinician right away. It may mean your condition is changing, your equipment is not working correctly, or your oxygen or medication dose needs adjustment. Your advocate can help you describe your symptoms clearly, schedule urgent appointments, and ensure your equipment is checked.
  • How can a patient advocate help with Medicare oxygen and nebulizer coverage?
    Advocates help gather records, schedule face to face appointments, fill out DME forms with you, communicate with clinicians, submit paperwork to DME suppliers, and confirm that your equipment is ordered, delivered, and maintained. They can also help troubleshoot equipment problems, coordinate supply refills, and support you emotionally when the process feels overwhelming.
  • Can I lose my Medicare oxygen coverage if I skip follow-up visits?
    It is possible. Many plans and suppliers require updated documentation over time to show that you still meet medical criteria. Regular visits and tests help protect your coverage and make sure your treatment plan is still right for you.
  • What should caregivers know about supporting someone on home oxygen or nebulizers?
    Caregivers should learn how the equipment works, what settings are prescribed, how to spot signs of low oxygen or distress, and how to contact the DME company or clinicians if there is a problem. Advocates can support caregivers by sharing clear instructions, written checklists, and backup plans.

References

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