Keeping up with doctor’s appointments is essential to managing health and staying informed, but it can often feel overwhelming. From scheduling and transportation to understanding medical advice and ensuring proper follow-up, there are many details to manage. This is where Understood Care can help. Our advocates serve as trusted guides, working alongside you or your loved one to make the process easier, more organized, and more comfortable.
Personalized Support Before and After Every Appointment
Understood Care advocates provide hands-on help with all aspects of medical visits. We help you schedule appointments, confirm provider information, and prepare for the visit itself. This might include reviewing your questions ahead of time, making sure prescriptions are current, or gathering any medical records needed. After the appointment, we help you understand the doctor’s recommendations and take the right steps to follow through on care instructions, referrals, or additional tests.
A Partner to Help You Understand Your Care
Medical visits can involve unfamiliar language, new diagnoses, or complex treatment plans. Your advocate is there to help translate this information into clear, understandable terms. We make sure you feel confident about what was discussed during the visit and that you know what actions to take next. If something is unclear or left unanswered, your advocate can follow up with your provider to get the information you need.
Coordination Across Your Care Team
Many people receive care from more than one doctor. Your advocate helps ensure that your care is well coordinated across primary care providers, specialists, and other professionals. We help share information between offices, keep records consistent, and make sure appointments align with your overall care goals. This reduces confusion and helps prevent important details from being overlooked.
Support for Getting to and From the Appointment
Transportation should never be the reason you miss a doctor’s visit. Your advocate helps you arrange reliable ways to get to and from appointments. Whether that means booking a ride service, coordinating with a caregiver, or finding community transportation resources, we make sure you have safe and timely access to care. We also consider mobility needs, language assistance, and other accessibility factors to support your comfort and safety.
Emotional and Practical Support Throughout
Doctor’s visits can bring up feelings of stress, uncertainty, or fatigue, especially when managing long-term conditions or complex health needs. Understood Care advocates are here to offer steady support throughout the experience. We are here to listen, provide encouragement, and help you make informed decisions without feeling overwhelmed.
Confidence in Every Step of the Journey
With Understood Care, you are never alone in managing your medical appointments. From the moment you schedule your visit to the follow-up that comes afterward, your advocate is there to help you stay organized, prepared, and empowered. We make it easier to stay connected to the care you need and to move forward with confidence.
When you're admitted to a hospital, you might assume a dedicated patient advocate will be assigned to help you navigate appointments, insurance questions and medical decisions. The reality is more complicated. Hospitals have systems in place to handle patient concerns. However, whether you'll get the personalized, ongoing support you need depends on federal requirements, state laws, and the hospital's own policies.
Understanding what ongoing support hospitals must provide, and what they often don't, helps you know when to seek outside help for yourself or an aging loved one.
Are Hospitals Legally Required to Have a Patient Advocate?
The short answer is no. There is no federal law that requires hospitals to employ someone with the specific title of "Patient Advocate." However, hospitals that receive Medicare and Medicaid funding must meet certain requirements that create the functional role of advocacy, even if the job title varies.
What U.S. Law Requires (and Doesn't)
The Centers for Medicare and Medicaid Services (CMS) establishes "Conditions of Participation" that hospitals must follow to receive federal reimbursement. Under 42 CFR § 482.13, hospitals must inform patients of their rights and provide a clear process for resolving complaints and grievances.
These federal requirements include:
- Providing patients with a written "Notice of Rights" before or during care
- Maintaining a formal grievance process with documented responses
- Allowing patients to make informed decisions about their treatment
- Protecting patients' right to request or refuse medical procedures
- Ensuring patient access to medical records
What's missing from federal law is any mandate to employ a dedicated individual to guide you through your care journey. Hospitals meet their legal obligations through patient relations departments, risk management staff or grievance committees; not necessarily through one-on-one advocacy.
The Grievance vs. Complaint Distinction
Hospitals differentiate between routine complaints and formal grievances, and this distinction matters for patients.
A complaint is an issue that can be resolved quickly (often within 24 hours) by staff who are present at the time. If you're unhappy with your meal or need extra pillows, that's typically handled as a complaint.
A grievance is a formal expression of dissatisfaction regarding care, abuse, neglect or policy violations. Grievances require written responses from a designated committee, usually within seven days, and must include details of the investigation resolution steps.
According to Amanda Ledwich, Lead Patient Advocate at Understood Care, "Most hospitals do provide a patient advocacy department. However, when employed by the hospital, most of the time, the primary focus is on what is best for the hospital. Patients realize they need more support when diagnosis, tests and procedures are not being explained at all by patient advocacy, case management or physicians."
Accreditation & Industry Standards
The Joint Commission, which accredits most U.S. hospitals, strongly encourages patient advocacy roles but doesn't require a dedicated advocate position. Starting January 2026, The Joint Commission's "Accreditation 360" model shifts toward outcomes-based performance rather than checkbox compliance. This means hospitals must demonstrate the impact of their patient rights processes, not just prove the processes exist.
The new framework includes 14 National Performance Goals (NPGs) that emphasize advocacy as an integrated safety system rather than a single department. For example, NPG #7 focuses specifically on patient rights, including informed consent and reporting abuse or neglect.
State-Level Variability
Some states go further than federal requirements, though no state mandates a dedicated advocate in every hospital.
California has particularly strong protections, especially for mental health patients. The Lanterman-Petris-Short Act established county-level mental health patient advocates who have no clinical or administrative ties to the facility. For general medical hospitals, California law requires that patients have the right to access protective and advocacy services, and in some cases, an attorney.
New York requires all hospitals to make staff available to explain patient rights and answer questions. In the NYC Health + Hospitals system, patient representatives visit patients to ensure they understand their Bill of Rights and assist with billing disputes.
Florida emphasizes "individual dignity" in its hospital statutes, requiring hospitals to respond in a "reasonable manner" to any request for services and inform patients about available support services, including interpreters and financial counselling.
Illinois grants patients the explicit right to file complaints with the patient representatives, who act as liaisons between patients/families and medical staff to address concerns regarding care, quality, or rights.

What Hospital-Based Patient Advocates Actually Do
When hospitals do employ patient advocates, sometimes called patient representatives, ombudsmen or patient relations specialists, their responsibilities center on resolving institutional issues rather than providing hands-on care coordination.
Common Responsibilities
Hospital advocates typically handle:
- Complaint and grievance processing
- Communication facilitation between patients and medical staff
- Conflict resolution related to hospital policies
- Discharge planning coordination
- Explaining hospital bills and insurance coverage (limited to hospital charges)
Most hospital advocates focus on protecting the institution from liability while addressing patient dissatisfaction. Their work is valuable for resolving immediate concerns during your hospital stay, but it has clear boundaries.
Limitations of Hospital Advocates
Hospital-based advocates rarely:
- Attend medical appointments with you
- Coordinate care after you leave the hospital
- Navigate complex Medicare benefits or coverage appeals
- Help with housing, transportation or meal programs
- Manage ongoing medication reconciliation
- Provide long-term support for chronic conditions
Debbie Hall, Director of Operations at Understood Care, points out a common gap: "Patients realize they need more support when questions go unanswered. If a patient declines service, medication or tests and is being overridden, that's when they understand the hospital advocate has limitations."
Hospital advocates also work under high caseloads. They're employed by the hospital's governing body—typically reporting through the risk management or legal department—which creates an inherent conflict of interest when patient needs clash with hospital policies or revenue concerns.
What to Ask Your Hospital About Advocacy Services
Not all hospitals offer the same level of support. When you or a loved one is hospitalized, these questions can help you understand what's available:
- Do you have a patient advocate, patient representative or ombuds office?
- What types of issues can the patient advocate help me with?
- How do I contact the patient advocate after I'm discharged?
- Who will explain my discharge plan, follow-up appointments and medication changes?
- Can someone help me understand how my insurance will cover this care?
- What happens if I have a concern about my treatment or discharge plan?
Be aware that even hospitals with strong patient relations departments typically can't assist with the Medicare navigation, long-term care coordination or post-discharge support that many seniors need most.
Why Many Patients Still Struggle Even When Hospitals Offer Advocacy
Even when hospitals have robust patient relations departments, significant gaps remain in the continuum of care.
Fragmented Care During Transitions
The most dangerous moments in healthcare occur during transitions, such as moving from hospital to home, from one specialist to another, or from acute care to rehabilitation. Hospital-based advocacy typically ends the moment you're discharged.
Research shows that 30% of primary care physicians are unaware that their patient was admitted to the hospital. Patients whose doctors don't know about their hospitalization are twice as likely to report post-discharge problems.
Medication Errors After Discharge
Among hospitalized seniors, about half are considered medically frail, according to one study. During a typical hospital stay, patients experience an average of nearly four medication changes, but up to 60% of discharged patients lack knowledge of their medications.
The consequences are serious:
- Within seven days of discharge, 39% of patients make at least one medication error
- By 90 days post-discharge, 50% have experienced a medication error
- Many errors stem from poor communication between home health agencies and hospital providers
Medicare Complexity for Older Adults
Seniors face cascading challenges that hospital advocates aren't equipped to address:
- Managing appointments across multiple specialists
- Understanding Medicare coverage rules and exceptions
- Coordinating transportation to medical appointments
- Applying for benefits like Extra Help or Medicare Savings Programs
- Managing chronic conditions that require lifestyle changes and ongoing monitoring
The hospital grievance system wasn't designed to solve these problems. It exists to handle concerns about care within the hospital walls, not the complex web of services seniors need once they return home.
"Seniors often struggle with Advanced Beneficiary Notices," explains Debbie Hall. "These are forms providers have patients sign while at the office or facility stating that Medicare 'may not' cover a service or test, and if they don't, the patient takes responsibility for those charges. Patients don't always understand what Medicare covers and what it doesn't, especially when it comes to imaging and lab tests.

How Personal Patient Advocates Bridge the Gap
Independent patient advocates offer a different model: personalized, longitudinal support that follows you across all healthcare settings. Sometimes called patient navigators, these professionals work exclusively for you.
When to Seek Outside Advocacy
Consider reaching out to an independent advocate if you:
- Feel overwhelmed by medical paperwork and appointment scheduling
- Live alone or lack consistent family support
- Recently had a hospitalization or received a new diagnosis
- Manage multiple chronic conditions with different specialists
- Don't understand your insurance coverage or recent medical bills
- Notice that important information isn't being shared between your doctors
The difference between hospital-based and independent advocacy is the difference between someone who works for the institution and someone who works for you. Learn more about why advocates matter for your care.
What Independent Advocates Can Do
Unlike hospital-employed staff, independent advocates work for you, not the healthcare system. Their services include:
- Attending doctor appointments and taking detailed notes
- Coordinating care between multiple providers
- Managing medication lists and identifying potential interactions
- Helping you understand insurance coverage and filing appeals
- Arranging transportation, home modifications and durable medical equipment
- Providing emotional support and translating medical information into plain language
Amanda Ledwich notes a critical difference between hospital-employed advocates and personal advocates: "Hospital advocacy pertains to their time in the hospital only. It does not go beyond discharge. Personal advocacy can help at home and while hospitalized, coordinating with case management and other hospital providers."
How Understood Care's Advocates Support You
At Understood Care, advocates are available through most Medicare plans at no additional cost to qualifying seniors. The support is comprehensive and human-centered.
"Scheduling physician and specialist appointments is one of the biggest challenges," says Ledwich. "Appointments may be scheduled or referred, but then when patients call from home, they don't have the information, or there are no appointments available, and they're waiting weeks when they need to be seen three to seven days post-discharge."
After a hospitalization, advocates…:
- Ensure follow-up appointments are scheduled within the critical three-to-seven-day window
- Verify that home health services actually begin (not just get ordered)
- Confirm you understand your new medications or post-surgical instructions
For ongoing chronic conditions, advocates…:
- Help coordinate care between your primary doctor and specialists
- Review your medications for potential side effects
- Organize follow-up care and keep your treatment plan on track.
With benefits and coverage, advocates…
- Analyze medical bills to ensure you're not being charged incorrectly
- Help you access Medicare benefits you might not know exist
- Connect you with programs for housing, transportation and meals
Hospitals are not required by federal law to employ dedicated patient advocates, and even when advocacy services exist, they focus primarily on resolving issues within the hospital's four walls. For seniors and families navigating the complexity of Medicare, chronic illness and fragmented care, that institutional support often isn't enough.
Understanding the limits of hospital-based advocacy helps you recognize when you need more comprehensive support. At Understood Care, we provide friendly, informed advocates who work exclusively for you—not the healthcare system—ensuring nothing falls through the cracks as you navigate your care.
If you or a loved one need support coordinating medical care, understanding benefits or managing the paperwork that comes with serious illness, get started with Understood Care today.

FAQ
Do hospitals have to provide a patient advocate?
No federal law requires hospitals to employ someone with the title "Patient Advocate." However, hospitals receiving Medicare and Medicaid funding must provide written rights information, maintain a formal grievance process and have designated staff to handle concerns. This person might be called a patient representative, ombudsman or patient relations specialist.
How do I request a patient advocate at a hospital?
Ask a nurse, social worker or case manager to connect you with the patient relations department or patient advocate. Most hospitals have a dedicated phone number listed on patient information boards in your room. You can also call the hospital's main number and ask to be transferred to patient advocacy or patient relations.
Who pays for a patient advocate?
Hospital-based advocates are hospital employees, so there's no direct cost to patients for their services. At Understood Care, advocacy services are covered through most Medicare plans at no additional cost to qualifying seniors. Private independent advocates typically charge hourly or monthly fees.
What is the role of a patient advocate?
Hospital-based advocates resolve complaints and grievances, facilitate communication between patients and medical staff and explain hospital policies and billing. Independent advocates provide broader support including attending appointments, coordinating care across providers, managing medications and navigating insurance coverage. The key difference is that hospital advocates work for the institution while independent advocates work for the patient.
What's the difference between a complaint and a grievance?
A complaint is an issue that can be resolved quickly (usually within 24 hours) by staff present at the time, such as concerns about food service or room temperature. A grievance is a formal written expression of dissatisfaction about care quality, patient safety, abuse, neglect or policy violations. Grievances require a formal investigation and written response from the hospital, typically within seven days.
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